We were still trying to learn how to force feed Jax and
administer subcutaneous fluids using an IV bag (at this point on a daily basis)
when another major event occurred that further derailed my blogging.
One day in early May of 2016, my step-son,
Travis (who was 22 at the time) came downstairs to the kitchen and said, “Mom,
does my chest look swollen to you?”
It was beyond swollen.
It was as if he was trying to be silly and look like he had boobs – only
the left side was way bigger than the right side. I said, “Yeah, what the hell?” He told me that he had worked out really hard
the day before and he could barely extend his arms away from his body. I told him to drink lots of water and take
ibuprofen. No big deal, I thought.
Later that night he yelled down from upstairs, “Mom! Could you come look at this? Is this bad?
This is my pee.” He was holding
one of our drinking glasses, which was filled with a black liquid. I blinked a couple of times and stood there
in a stupor for a good minute. I was
having trouble processing the information I had just received and didn’t know
whether to be more shocked by the fact that he had just peed into one of our
drinking glasses, or the fact that his pee was as black as Coke. My maternal instincts finally kicked in and I
focused in on the fact that something was very wrong with his body.
A trip to the emergency room revealed that he had rhabdomyolysis.
(“Rhabdomyolysis is a rare condition that
occurs when muscle cells burst and leak their contents into the bloodstream.
This can cause an array of problems including weakness, muscle soreness, and
dark or brown urine. The damage can be so severe that it may lead to kidney
injury.” Source: www.health.harvard.edu/blog) Travis’ creatine kinase (CK) levels were the
highest in the hospital’s recorded history.
He was sort of proud of that.
He
was admitted to the hospital and put on IV fluids for 7 full days while they
watched and waited for his CK levels to come down to normal. [Of note, my advice to him earlier that first
day was only partly correct. It was good
for him to drink water, but ibuprofen is NOT recommended because it may worsen
kidney function. Source: www.health.harvard.edu/blog]
His CK levels did eventually come down, he returned home,
and we resumed our “normal” life until August of that same year…
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